As you all know, Keegan has a Mickey Button which he is fed Nutren Jr, (formula) through in order to get the nutrition and calories that he does not get because HE DOES NOT EAT...ugh.
We have been asked many times how it stays in and how it is "fixed" when it pops out. Well when we took the kids swimming at Aunt Noodle's on Sat. Keegan kept complaining that his button was hurting (not normal). The next morning we checked it and saw that the stem was discolored and decided we needed to change it. Keegan was VERY unhappy but we explained that it was going to pop and we didn't want that to happen at school.
So....Morg and I took pictures while I assisted Troy in changing the button and Breckyn did her part by rubbing his head and talking so sweetly yo him. Enjoy :)
This is the NEW button (see how clean & pretty). To put it in, we get his kit that has it all. We use KY Jelly to make it go in easier so it won't pull on his tummy since the hole immediately starts slowly closing and the longer the time the more it hurts him. We also use one of the long wooden cotton swabs to put in the stem to keep it firm. Since it is like rubber, we would not be able to get it in.
After it is in, we get the locking syringe and add between 4 & 7 ml of water. We usually add 4 and check it about 1 a month. If it is pulling to far out, we add more and then we can see if it is leaking.
He has done this sooooo many times, yet it is still scary to him. I don't blame him. This boy has been through more in his short little life than most do in a lifetime.
And just to update you on surgeries...The Endoscopy will be on April 17 and he will have his tonsils and adenoids removed on June 1. We pushed this one back because they told me it could be up to a 2 week recovery due to pain and he already has 15 absences due to being sick or Dr. visits.