This will be short and sweet as I don't feel up to writing nor expressing much emotion about it today.
Someone said that they did not like Blogs because they make families look perfect and always happy. Well my blog defiantly does not fall under that category.
Anyway, Dr. Sweetman called us in to let us know that Keegan's EEG came back normal. That was great news, no seizures. She however let us know that his MRI had not come back the same. He has what is called Chiari (sounds like kee-o-ree?) Malformation.
This will be a very rough explaination of this, but we were not given alot to go off of. She wants us to wait till we see the surgeon......At the base of the brain there are 2 things that look like tonsils which go into the spinal cord/brain stem/whatever. They are supposed to be less then 5 mm and Keegan's are 12mm. This creates pressure and the side effects are vomiting (duh), choking (aduh), migraines and tightness in the extremities (duh again). Sorry, but I can't help but wonder why he was never checked for this before, it explains so much. Anywho, we are waiting to hear from a Neurosurgeon, who will decide whether or not Keegan will undergo surgery.
I'm sure that you can pretty much figure out how I am feeling about all of this. If not, I'll leave it to your imagination.
Thank you all for the prayers in our behalf. Please keep them up and please add a little emphasis on our poor boy. I want so much for him to have at least 6 months of a normal child's life. He is my hero and although as of late he is scared very easily, he always puts on a brave face for his wimpy mom.
We Love You Son!
10 comments:
Timaree and Troy, I read this and cried. I could feel your mommy heart breaking...a family can only take so much. Our family is holding a fast for you guys this weekend. Your son is beautiful and I am sure that Heavenly Father is mindful of you even when life throws some pretty harsh curve balls! I am so glad we found you guys. I will lift you guys up in prayer every night for a while I promise. Stacey
Timar, I am so sorry. I wish you could have gotten better news. I will pray for you guys and keep my fingers crossed for the best. Don't give up hope and do your best to turn it over to the Lord-He won't leave you. Luv you, friend.
Timaree and Troy, I am so sorry to hear about this! We will keep Keegan in our prayers and ask our friends to do so also! Keep us all posted!
Man you poor guys. We will keep your family in our prayers. I have always remebered you having a lot of health issues with him. We can only hope and prayer that it will all be a success. We love you lots.
Hey Timaree,just want you to know your son and family are in our prayers. If you guys need anything or help with anything let us know. We just live down the road and we will be there to help in anyway. David
Wow, your family has grown up so much!! I am so sorry you have such hard trials in your life. I hope things get better for you soon. Tell all your family hi for me. I miss your sweet kids.-Larin
K- Just wanted to let you know that I check your blog.I am glad that T roy is okay. We are glad.Adam was not to happy that we didn't know, he felt like a crappy friend. I am glad that you don't always post just the happy stuff. I was told that my blog should be HAPPY, and I was posting too much SAD stuff.....well since it's for friends and family and they want to know whats going on, I say you do both. If they don't like it then they don't have to read your blog! Just know that we love you guys and are VERY grateful for you!
and you thought I was done!ha Hope all goes well with Keegan he is so sweet. We'll keep him in our prayers. Koltin hopes he gets better=)
Timar,
When I talked to you last night, I didn't know all of this about Keegan. I am so sorry, I guess wrapped up in our Health issues right now. We will keep all of you in our prayers, and keep smiling it has to get better, right. We love you and will be thinking of you
Aunt Nat
This brings tears to my eyes. You are such a good mommy! We will continue to keep you in our prayers.
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